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Gwen's Story: Perinatal Stroke

  • Leahs Story - Spinal Cord Stroke - Childrens Specialized Hospital


    An outstanding softball player known for her infectious smile and tenacity on the field, nine-year-old Leah was playing with her sister when she began to experience tingling in her fingers. Rushed to the emergency room, she was later diagnosed with a very rare spinal cord stroke. Only 2% of all strokes originate in the spinal cord and they are almost unheard of in young, healthy children.

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  • Gwens Story: Perinatal Stroke


    Rebecca Ciccozzi had a normal pregnancy and delivery with her second daughter, Gwen. But at 3 months old, Gwen wasn't using the right side of her body. She was diagnosed as having had a stroke in the womb. See Gwen's story and the incredible progress she's making with the help of her UH Rainbow care team.

    Learn more about UH Rainbow Babies & Children's here,

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  • Perinatal stroke: what is it?


    We are researchers at Newcastle University developing effective, home-delivered, play-based interventions to improve hand function in hemiplegic cerebral palsy and after perinatal stroke.

    Perinatal stroke is the leading cause of hemiplegic cerebral palsy (HCP). HCP often leads to difficulties with bimanual tasks and can severely impair independence, since many activities of daily living require skilful bimanual dexterity.

    We have recently developed a parent-delivered therapy approach for babies in the first 6 months of life affected by perinatal stroke.

    #PerinatalStroke #HCP #HemiplegicCerebralPalsy

  • In-utero stroke


    Most parents don't associate stroke, or the interruption of the blood supply to any part of the brain, with a baby or a child.

    But statistics show that a stroke occurs during one in 4,000 pregnancies.
    Chandra Whitfield learned that her son, Joey, suffered a stroke in-utero. She talks about why she knew something was just not right, and how an early intervention and treatment therapy plan is helping with Joey's development.

    Dr. Jeremy Timothy, Pediatric Neurology, Cardon Children's Medical Center, talks about why strokes happen in-utero and what parents should know about the signs and symptoms.

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  • When Your Child Has a Stroke, Whats Next?


    Bria Scharf’s 9 month check-up was puzzling. What appeared to be right arm and right leg dominance, were actually signs of weakness on the left side of her body. Tests showed Bria may have had a stroke in utero. Our therapists have been working with her ever since and at 5 years old now, her story is pretty amazing to watch.

  • Pediatric Stroke: one family tells their story


    Travis and Brooke Ewert tell about their son Trevor's stroke and follow-up care they received from Children's Hospital Colorado.

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  • Tell Me a Story: Life Goes on After Childhood Stroke


    Aiden Putnam was just 7 when it happened. He was at a school party playing laser tag, and he collapsed. Specialists at Cincinnati Children's determined he had a mini stroke at the laser tag arena and a full-blown stroke after that. But he pulled through and relearned how to walk and talk and be a kid again. His mom, Jennifer Putnam, says the family gained perspective and never lost hope. This is their story.

  • Bradys Story - Part 1 of 3 - surviving stroke in utero


    Pregnant with their first baby, the Hadfields were devastated when little Brady was born having a stroke in utero. He wasn't expected to walk or talk or see but with advancements in research and treatment, he has surpassed several milestones.

  • Surviving a Pediatric Stroke | Cincinnati Childrens


    At age 10, Claudia Veach loves to read Harry Potter books. But two years ago, her love of books came to an abrupt end when she suddenly had a stroke. Her mom was at work when it happened but got home in time to meet the ambulance.
    “I asked the EMT what is happening to her and he said I believe she’s having a stroke. And I said she’s 8 and he said as long as you have blood pumping through your veins, you can have a stroke,” said Jill Veach, Claudia’s mom.
    At Cincinnati Children’s, doctors responded quickly, running a series of tests that confirmed Claudia’s stroke.
    “As soon as that stroke begins, as soon as that loss of blood flow begins, time is really incredibly critical, the sooner we can act to help either open up the blood vessel or better support the brain’s recovery after that stroke, is really quite important,” said Dr. J. Michael Taylor, pediatric neurologist at Cincinnati Children’s. (points to scan) “This is Claudia’s imaging and on the left we see the picture of her stroke that white area right there.”
    Pediatric strokes are rare, happening in about 1 in 25,000 children. Claudia’s type of stroke is called a focal cerebral arteriopathy, which causes blood vessel inflammation that leads to narrowing in a major artery in one part of the brain. Doctors are hoping more research will yield answers as to why this happens.
    “What we think is the child who shows up with this stroke has the same kind of upper respiratory bug or what have you, you and I are going to get a cold from but for whatever reason in this particular age group, their bodies mount an immune response that causes antibodies that cause inflammation in that blood vessel. Their immune system did what it was supposed to do to get rid of their infection but it got a little overzealous and it ended up effecting and swelling up the blood vessel in their brain,” said Dr. Katrina Peariso, pediatric neurologist at Cincinnati Children’s.
    While at Cincinnati Children’s, Claudia’s care team treated her with medications including high dose steroids that targeted the inflammation. She responded well and went home. Outpatient therapies followed. What wasn’t expected was the once avid reader didn’t want to read anymore.
    “I didn’t like reading at all when I got out of the hospital. I didn’t want to open a book. When I would open a book, I would get like a headache or something like that,” said Claudia Veach.
    Jill Veach said, “They were able to determine there was a portion of reading comprehension that was damaged in the part of her brain that the stroke occurred. Her brain had to reroute that information. So something that became so naturally and so easy to her no longer did so she no longer wanted to do it anymore.”
    To fix the problem, Claudia took part in more therapy. In addition, her mom started reading to her just like she did when she was younger which helped Claudia find her love of reading again.
    “There was one night she said mom, can I read to you? I said absolutely. I gave her the book and she read to me and that was it,” said Jill Veach.

    At her two-year check-up, Claudia did well and is on her way back to a normal life. She and her mom hope by sharing their experience, it will help others.

    “Strokes can happen at any age, that’s the number one piece. Still when we tell people about it, the reaction is what? She had a what? They always think we meant to say seizure, but we didn’t. It was a stroke and they can happen at any age. Knowing that is huge and if there’s one person that gets that message and their child is saved then we’ve done our job,” said Jill Veach.

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    Hey friends! It has been 9 months since Isaac had his perinatal stroke. Today I am sharing with you how he is doing!

    If you like this video, please give it a thumbs up and also subscribe to my channel if you would like to see more videos. I post videos about everything - MOM LIFE. Don't forget to hit that bell to be notified as soon as I post a new video!

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  • A Stroke Can Happen at Any Age: Rhys’ Story


    The International Alliance for Pediatric Stroke and the American Heart Association/American Stroke Association are teaming up to spread pediatric stroke awareness. Watch Rhys’ inspiring pediatric stroke story to learn more.

    We encourage you to support this awareness campaign by sharing this video with your friends, family and colleagues. With your help we can reach our ultimate goal of increasing research to better understand how to recognize, diagnose and treat strokes in babies, children and the unborn.

    To learn more about pediatric stroke and other ways you can help, visit:

    Thank you to our videographer and film editor Peter Soby of SobyVision! Contact: 402-670-2490

  • Perinatal Stroke: Opportunities & Challenges of Early Intervention | Anna Basu & John Martin | DMCN


    Discussion of the paper: 'Early intervention after perinatal stroke: opportunities and challenges'

    The contributors in the podcast are as follows: Dr Anna Basu - NIHR Career Development Fellow and Honorary Consultant Paediatric Neurologist, Newcastle University, UK and Prof. John Martin - Prof. of Physiology, Pharmacology and Neuroscience, City College, City University, New York, USA.

    Read the paper here:

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    DMCN Journal:
    Developmental Medicine & Child Neurology (DMCN) has defined the field of paediatric neurology and childhood-onset neurodisability for over 60 years. It is a multidisciplinary journal, one of the world’s leading journals in the whole field of paediatrics. DMCN disseminates the latest clinical research results globally to enhance the care and improve the lives of disabled children and their families.

    DMCN Journal -

    Mac Keith Press:
    Mac Keith Press exists to improve the care of disabled children by extending the knowledge and understanding of developmental medicine and paediatric neurology. We publish the journal Developmental Medicine and Child Neurology (DMCN), and books in related subject areas. These are of interest to researchers, health professionals, clinicians, therapists, parents and all involved in the care of children and young people with neurodevelopmental conditions.

    Mac Keith Press -

    Find us on Twitter!
    @mackeithpress -

  • Our Son Had a Stroke | A Very Personal Wine Wednesday


    This story is very personal and emotional to talk about. I apologize if I was all over the place and not very articulate. :) I hope you enjoyed getting to know about my special little boy. He is learning, growing and over coming his stroke every single day... with a big smile on his face! We love him so incredibly much and are blessed beyond words to have him in our lives!!

  • Stroke in children: Williams stroke recovery


    In 2018, a then 2-year-old Will had a stroke.

    Watch as Will's parents film and support his recovery and therapy, along with his big sister. From a boy initially unable to stand unassisted, to reaching a very special goal.

    Children are often not thought of when discussing stroke. Every year around 2-3 in every 100,000 children will have a stroke.

  • Exploring the Caregiver Impact Associated with Perinatal Stroke


    Perinatal stroke occurs between the 20th week of gestation and the 28th day of life and is typically accompanied by functional and neurobehavioural deficits. This session will explore how the functional and neurobehavioural outcomes following perinatal stroke impact the psychosocial well-being of the caregivers. Additionally, it will highlight the importance of assessing caregiver impact, especially through tools developed specifically for the perinatal stroke population. Understanding factors associated with caregiver well-being has implications for informing treatment and interventions.


    Muhammad Khan

    Muhammad is a student at the University of Alberta, currently in his fourth and final year of the BSc Honors in Neuroscience program. His research interests involve studying the long term impacts of neurological paediatric disorders on children and their families. As such, his current research projects, in Dr. Carmen Rasmussen's lab, focus on exploring the association between perinatal stroke and the subjective well-being of the caregivers and the child. Muhammad hopes to pursue a career in paediatrics in the near future.

    Carmen Rasmussen, PhD (Developmental Psychology)

    Carmen is an Associate Professor in the Department of Pediatrics at the University of Alberta and Research Affiliate of the Glenrose Rehabilitation Hospital in Edmonton, AB. She is currently a CIHR New Investigator and her research is focused on understanding neurobehavioural difficulties among children with neurodevelopmental disabilities.

  • Anat Baniel Method® with Jon Martinez - Neonatal Stroke


    Temperance is 18 months old, she had a stroke at birth. She received 6 Anat Baniel Method® lessons with Jon Martinez over 3 days. Watch as she points with her right hand for the first time during the lesson and hear the mom's testimonial.

    For more information visit:

    Also visit Facebook: Jon Martinez Movement Matters

  • Knowing Stroke Symptoms Saves Mother and Child


    A stroke doesn't have to be disastrous. Although strokes are one of the leading causes of death and long-term disability, knowing how to identify stroke symptoms and taking fast action can save a life. This knowledge saved the life of Sara, who was 36 years old and in her first trimester of pregnancy, and that of her unborn child.

    In the case of Sara, stroke signs were initially thought to be pregnancy-related issues. Fortunately, her family was able to identify the symptoms of stroke, recognizing that they were far worse than what could be considered pregnancy-related problems, and rushed her to the hospital. Sara had suffered a rare brain stroke (cerebral venous thrombosis). Rapidly identifying the signs of stroke, reaching a diagnosis and subsequently beginning stroke treatment probably saved her life and enabled her to enter a stroke rehabilitation program where she gradually reclaimed her life.

    Today, because the signs of stroke covered in this video were rapidly identified and acted upon, Sara is almost completely recovered and enjoying her toddler. This is her story.

  • Bradys Story - Part 2 of 3 - surviving stroke in utero


    Brady Hadfield suffered a stroke in utero. His prognosis was grim. But and his family fought back and Brady has surpassed several milestones thanks to advancements in resarch.

  • Stimulating the brains of pediatric stroke survivors | Brandon Craig | TEDxMacEwanU


    If you think the elderly face the highest risk for stroke, think again – the largest group of stroke survivors are actually babies. In this talk, graduate student Brandon Craig discusses the potential of using brain stimulation to help kids rehabilitate from the injuries caused from perinatal stroke. You can most likely find Brandon Craig at the Alberta Children’s Hospital where he is studying clinical neurosciences through the University of Calgary to complete his Master of Science degree investigating various avenues of pediatric strokes. Brandon recently graduated from MacEwan University in June of 2017 where he obtained a Bachelor of Science degree majoring in Honours Psychology, and received the President’s Medal of Academic Success and Student Leadership. During his time at MacEwan University, he was a Student Representative on the Research Ethics Board, a MacEwan Ambassador, Vice-President of MacEwan Health Promotion, and a Family Liaison of the Intensive Care Unit at the Royal Alexandra Hospital. Additionally, Brandon participated in various research projects investigating the cognitive neuroscience of stroke and attention. As an avid hockey fan, Brandon also served as a statistical analyst and player development coordinator for the Edmonton Oilers of the National Hockey League for 2 seasons. He is known to appreciate the learning environment MacEwan University possesses and admires the faculty and students for molding him into the student he is today. This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at

  • My Child, My Story: Colton & Carters Story


    The Children's Mercy NICU has proven itself twice over for the Clark family. Colton had a stroke in utero and Carter was born three months premature. Although they had a rough start, today these healthy boys are double the pleasure for mom and dad.

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  • Diagnóstico y manejo del stroke perinatal agudo


    Conferencia: Diagnóstico y manejo del stroke perinatal agudo

    Conferencista: Dra. Donna Ferriero
    Presenta: Dr. Carlos Rugilo

  • Stroke | Amys Story


    Learn how strokes can affect younger people by watching the story of Amy, a mother of five, who had a stroke at age 47 before seeking treatment at The Johns Hopkins Hospital Stroke Center.

  • Prince Quire’s Stroke Story


    Every 40 seconds, someone in the U.S. has a stroke. One of those people was Prince Quire, who is African American. At only 39 years old, he was younger than the typical stroke patient, but EMTs know that a stroke can happen at any age. Stroke is the fifth leading cause of death for all Americans, including African Americans, but African Americans are twice as likely to have a stroke as whites are.

    Comments on this video are allowed in accordance with our comment policy:

    This video can also be viewed at

  • Stroke Perinatale : Dott.Baranello


  • Stroke Stories


    Film by Wesley Storey

    This film about the Living Books Project from Writing on the Wall in partnership with The Manchester Stroke Association demonstrates the benefits of creativity for health and wellbeing. Stroke victims relate their stories of survival, while Joyce Booth, Family and Carer Support Coordinator for Thameside and Glossop Stroke Association, discusses the impact of the project on the stroke survivors and their aim to make people more aware of the dangers of a stroke.

  • Man on a Mission: Genetic cause of stroke


    Dr. Guillaume Paré and his team are hunting for the gene that increases the risk of stroke across generations. Once they find it, they’ll be able to help families reduce risk. With your support, you can help save lives and join this passionate and dedicated community of Canadian scientists in working to make stroke history.

  • My Child Had a Stroke.


    Emma's daughter Bailey survived a stroke 12 years ago aged just 3 years old. This is Emma's story.

    Different Strokes is run by younger stroke survivors for younger stroke survivors. We have personal experience of the realities of life after stroke.

    We recognise that the Different Strokes community of younger stroke survivors and family members are the experts in stroke recovery and rehabilitation with first-hand knowledge of the issues and challenges facing families after stroke.

    Find out more:

    Share your story by emailing

  • Pediatric Stroke Severity Scale Validated


    Dr. Rebecca N. Ichord discusses the impact of a clinical trial that validated the use a pediatric version of the National Institutes of Health Stroke Scale to examine children with acute arterial ischemic stroke. See the related story at

  • The causes of stroke: Adults versus children | Boston Childrens Hospital


    Learn more about the Cerebrovascular Disorders and Stroke Program:

    The mechanisms of stroke in children are both similar and very different from those in adults, says Michael Rivkin, MD, director of the Cerebrovascular Disorders and Stroke Program at Boston Children’s Hospital.

    Strokes usually occur from an obstruction of blood flow in the brain. In adults, this is usually a complication of hypertension, atherosclerosis or diabetes, and is exacerbated by smoking and obesity. In children, the mechanisms are very different.

    For more information on the Cerebrovascular Disorders and Stroke Program, call 617-355-6388 (international: +1-617-355-5209).

  • Harrys CIMT Story - Chapter Two


    Constraint Induced Movement Therapy

    Harry is 4 years old and has hemiplegia. He has weakness in his left arm and hand, which makes tasks like using cutlery and dressing very difficult. He completed a 3-week programme of Constraint-Induced Movement Therapy.

    This is his story:

    For more information about CIMT Visit

    Follow more stories on our social media

    Or get in touch with us via
    Telephone: 0330 223 0077

  • Positive Outlook for Child Who Suffered a Stroke in Utero


    Jordan Marshall suffered a massive stroke in utero, which means she had a stroke before she was even born. The damage was so extensive that doctors didn't know whether she would ever walk, talk or see.

    Now 8 years old, Jordan has made incredible progress. She participates fully in school and excels academically. Despite some physical challenges, Jordan rides a bike, runs, skis and climbs.

    We really feel so fortunate to live in a place where we have access to the quality of care at Boulder Community Hospital and the Mapleton Center, says Kathryn Marshall, Jordan's mother. We feel like we are getting top-notch treatment and that has been a big part of why Jordan is doing so well today.

    Watch Jordan's video and learn about her progress through the help of BCH's rehabilitation services for children.

    For more information about this service, visit

  • Calvin the Conquerer: Child Triumphs Over Stroke


    Official Website:

    Calvin Wells has faced more challenges in is young life that most deal with in a lifetime. At 15 months old, Calvin had a stroke which required a craniotomy and debulking. Complications arose - he caught meningitis which developed into hydrocephalus, which now requires the use of a shunt. Calvin's parents - Robert and Angela, have been right by his side every step of the way. They credit Helen Devos Children's Hospital and Mary Free Bed Rehabilitation Hospital with saving his life and his future. Check out the family's amazing journey here. #AskForMary

  • Kevin Sorbo: Stroke Survivor - Never Give UP PSA


    Kevin Sorbo, actor and stroke survivor, shares the importance of survivors never giving up in their recovery.

  • Signs of Stroke in a Child: University of Pennsylvanias Dr. Lori Billinghurst


    Dr. Lori Billinghurst discusses the signs and symptoms to pay attention to in case of a stroke in a child. Stroke should be considered as a possible diagnosis in any child with a headache and additional symptoms of weakness or numbness (in the face, arm, or leg) or changes in walking, talking, or vision. Urgent brain imaging may be required to distinguish a migraine with aura from a stroke,” said Dr. Billinghurst. #ISC17

  • Medical breakthrough to test babies for stroke risk


    Babies could soon be tested within days of their birth to determine if they are at risk of suffering a stroke in their adult lives.

  • Kids Run the Bases - Brodys Story


    On the way home from vacation, Brody became very lethargic and wouldn't eat. He was diagnosed with an ischemic pediatric stroke and flown to Phoenix Children's.

  • Its not your fault


    Full title: It's not your fault: Education to remove misplaced mental health morbidities in parents of children with perinatal stroke
    Zeanna Jadavji, University of Calgary

  • Improving Arm Use In Hemiparesis


    Dr. Judy Gooch, a rehabilitation doctor shows how to improve arm use in hemiparesis.

  • I Am A Pediatric Stroke Survivor.


    I am a pediatric stroke survivor. May being Pediatric Stroke Awareness Month, I thought I would make a video about my story. Be sure to check out CHASA, an awesome organization that helps connect and support families whose children are pediatric stroke survivors:

    Music credits:
    Love Letters by Dan-O at

  • When Children are Affected by Stroke


    During the summer, 17-year old John Gyorky was staying with his grandparents while his parents attended a wedding and reception on the other side of town. During the reception, John’s parents received a call that John, who has Down syndrome, wasn’t acting quite right.

    After returning home and rushing John to the hospital, it was determined that he had suffered from a stroke. John was immediately taken via life flight to UH Rainbow Babies & Children’s Hospital in Cleveland, Ohio.

    “With a stroke that’s significant enough as this patient had, death is a very strong possibility,” said Dr. Alex Rotta, Chief of Pediatric Care Medicine.

    Fortunately, John made it to Rainbow with minutes to spare. Physicians from adult and pediatric neurology along with others were able to break down the clot in John’s brain.

    Today, John is back to the same fun-loving teenager he was before the night of his stroke.

    For more information about stroke in children, visit

    Please note that as of September 8, 2016, University Hospitals Case Medical Center has changed its name to University Hospitals Cleveland Medical Center.

  • What is a stroke - Childhood Stroke Project


    This animation was created as part of the Childhood Stroke Project - a collaboration between the Stroke Association and the Evelina London Children's Hospital.

    For more information about Childhood stroke, please visit:

    Stroke Association. Rebuilding lives after stroke.

  • Old Right MCA Perinatal Infarct with Wallerian Degeneration


    6-month-old male with a sibling who suffered a left middle cerebral artery perinatal infarct, an MRI was performed for evaluation of left upper extremity weakness and clumsiness. There is a chronic right MCA territory infarct with associated encephalomalacia and ex vacuo dilatation of the right lateral ventricle. No acute infarct on the diffusion weighted images, and no ischemic penumbra on the arterial spin labeled perfusion maps. Axial sections more inferiorly through the brainstem demonstrate prominent asymmetric volume loss within the belly of the pons on the right and right ventral medulla. The findings are compatible with sequelae of Wallerian degeneration. The color-coded fractional anisotropic maps confirm the asymmetric volume loss within the corticospinal tract on the right. Perinatal ischemic stroke has an estimated incidence of 1:2,300 live births, and most cases initially present with seizures. Infarcts results in long term neurologic morbidity including cerebral palsy, epilepsy, focal neurologic deficits and cognitive impairment. Etiologies include coagulopathies, emboli, infection and underlying vasculopathy. NMR235

    For more, visit our website at

  • Dr. Rebecca Ichord Explains that a Stroke Can Happen At Any Age


    The International Alliance for Pediatric Stroke and the American Heart Association/American Stroke Association are teaming up to spread pediatric stroke awareness. Here, Rebecca Ichord, M.D., pediatric neurologist at Children’s Hospital of Philadelphia, shares why it’s important.

    We encourage you to support this awareness campaign by sharing this video with your friends, family and colleagues. With your help we can reach our ultimate goal of increasing research to better understand how to recognize, diagnose and treat strokes in babies, children and the unborn.

    To learn more about pediatric stroke and other ways you can help, visit:

    Thank you to our videographer and film editor Peter Soby of SobyVision! Contact: 402-670-2490

  • ASH Impact Series: Sarah O’Brien, MD - Improving Treatment of Perinatal & Neonatal Stroke


    Sarah O’Brien, MD, discusses improving treatment of perinatal and neonatal stroke. Dr. O’Brien presented on the topic at the 2015 ASH Annual Meeting in a session titled “Challenging Scenarios in Thrombosis.” Visit for more on this topic and to watch other educational videos from ASH.

  • Dott. Baranello Stroke Perinatale


  • Alex: My stroke story


    Alex and Christina talking about how stroke has effected their lives.

  • Stroke Rehabilitation: The Madonna Approach


    Madonna Rehabilitation Hospitals offers a comprehensive stroke rehabilitation program for patients with mild to severe stroke. Multiple levels of inpatient care, as well as outpatient services, allow us to offer each patient recovering from stroke the right type of care at the right time. Our program serves adults and children from across the country who benefit from the combination of holistic caring and specialized technology utilized by clinicians with extensive training in stroke recovery.

  • Deficits Associated with Strokes in Children


    Celiane M. Rey-Casserly, PhD, Director of the Neuropsychology Program at Boston Children's Hospital, explains the deficits that occur in children who've had a stroke and how they differ from deficits that occur in adults.

  • Keiths Stroke Story | #BeaumontProud


    Latest updates and highlights at Beaumont:

  • My Child Has Had A Stroke. What Can I Do?


    If your child has had a stroke, they may have challenges ahead that not only affect them, but the entire family. Family members can suffer from depression and anxiety and may need help. That is why Cook Children’s offers a quarterly support group to help families connect with other parents and children who have been affected by stroke. Our program is dedicated to provide comprehensive care to pediatric stroke patients and their families. Go to for more stroke info.



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